The Planet of Rare Diseases - Rare Barometer Voices Results

Planeta bolilor rare
Dan Alexandru


We are going to find out about the results of the survey 'Juggling care and daily life: The balancing act of the rare disease community' was conducted by EURORDIS-Rare Disease Europe via Rare Barometer Voices and in the scope of the EU-funded project INNOVCare.

The EU-funded project INNOVCare gives a voice to the social and everyday needs of people living with a rare disease and addresses the need for person-centered care in European countries. The project is developing and testing an innovative care pathway that links health and social serviceº using case management.