The Planet of Rare Diseases - Involvement of Epags -

Emisiunea
Planeta bolilor rare
Data
Autor
Dan Alexandru

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Patient organisations can engage with clinicians who are preparing an application to help shape the scope of rare disease ERNs and potential services provided by successful ERNs (but this is not a formal requirement in the legislation). 

Today we will listen to a recording made at the Epag Steering Commitee that took place in Bruxelles from the 20th to the 21st of September.