The Planet of Rare Diseases - EURORDIS Leadership School -

Planeta bolilor rare
Dan Alexandru


The EURORDIS Leadership School aims at empowering patients to be valued partners in European Reference Networks (ERNs). It provides a capacity-building programme for European Patient Advocacy Groups (ePAGs) on leadership, network managemenþ healthcare and research.

The Leadership School covers a diverse range of topics including: self-awareness on leadership skills communicating with impacþ conflict resolution, networks healthcare pathways integrated care, e-health, research, therapeutic development and knowledge generation.