A milestone for 30 million patients in Europe 15 December 2016, Brussels, Belgium - The European Commission today announces the first 23 European Reference Networks for rare diseases (ERNs). This momentous step comes after years of collaboration and efforts between rare disease patients, clinical experts, and policy makers in EU Member States, at the European Commission and the European Parliament to bring the ERNs to fruition. At the Planet of Rare Diseases we are discussing today about NoRo participation in the Romanian network RO NMCA-ID and in ITHACA at EU level.