Emisiunea
Planeta bolilor rare
Data
Autor
Dan Alexandru

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Rare 2030 is a foresight study that gathers the input of a large group of patients practitioners and key opinion leaders to propose policy recommendations that will lead us to improved policy and a better future for people living with a rare disease in Europe.

This a two year project that will end in a presentation to parliament at the end of 2020 with recommendations on the most critical areas needing sound policy.