Emisiunea
Planeta bolilor rare
Data
Autor
Dan Alexandru

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The Regional Conference “Caring for Rare”, has been held on the 23rd and 24th of October 2020 by NORBS Serbia. The goal of this event was to facilitate exchange of knowledge and collaboration în Balkans on problems and possible solutions for patients with rare diseases. The idea was to gather patient representatives as well as medical experts and different stakeholders, to raise awareness about rare diseases to a higher level and agree on possible future steps in helping our most vulnerable ones. The Introduction speech of the event was given by the president of The National Alliance Serbia.