Last week the first Winter School for Rare Diseases was organized in Paris. It was held at the IMAGINE Institute, which is part of Hospital Necker and brings together patients scientists professionals and Eurordis volunteers from different committees and experts from the field. 

Patients are experts on their diseases and have a valuable contribution to make to shaping meaningful rare disease research, policies and services.

Let's listen to the opening remarks made by Yann Le Cam - the CEO of Eurordis!